Motor Neurone Disease / Rare Neurology Practitioner Service

The Motor Neurone Disease (MND) and Rare Neurology Practitioner Service service is for anyone who has a confirmed diagnosis with the below conditions and is registered with a GP in the east Surrey area:

• Motor Neurone Disease (MND)
• Multiple Systems Atrophy (MSA)
• Progressive Supranuclear Palsy (PSP)
• Corticobasal Degeneration (CBD)
• Huntington's Disease (HD)

The MND & Rare Neurology specialist practitioner can provide:

• Information and support at diagnosis and as things change.
• Home visit for intial assessment and follow up support.
• Liaising with local and specialist centres across health and social care.
• Access to Benefits information including any grants which may be available.
• Teaching of other health and social care professionals, but also family members and carers around the condition you may be living with.
• Help with service development.

How do I get to see the MND & Rare Neurology specialist practitioner?

Self-refer via your GP, consultant neurologist or via the MNDA, PSP Association, MSA Trust and Huntingtons UK.

How do I contact the MND & Rare Neurology specialist practitioner?

By phone, letter or e-mail, see below.

NB: The MND & Rare Neurology specialist practitioner is often out of the office, in clinic or on home visits. It is possible to leave a message and your call should be returned within two working days.