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Motor Neurone Disease (MND) and Rare Neurological Conditions Service Leaflet - Information for patients and carers

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  5. Motor Neurone Disease (MND) and Rare Neurological Conditions Service Leaflet - Information for patients and carers

The specialist practitioner for Motor Neurone Disease (MND) and Rare Neurological Conditions aims to improve the quality of life for people with the following conditions:

- Motor Neurone Disease (MND)

- Multiple Systems Atrophy (MSA)

- Progressive Supranuclear Palsy (PSP)

- Corticobasal Degeneration (CBD)

- Huntington’s Disease (HD)

The specialist practitioner can provide:

  • Information and support for people who have recently been diagnosed
  • Timely assessment and advice
  • Regular monitoring, assessment and intervention
  • A continuous point of contact
  • Onward referral and information about other services that can support you
  • Links with specialist services, charities and social care
  • Working with other health professionals to provide a multidisciplinary approach to care
  • Advanced care planning – helping people and their families talk through options and preferences for their future care
  • Teaching for health and social care staff to improve their understanding of these conditions.

Who is eligible for the specialist practitioner service?

The service is for anyone who has a confirmed diagnosis of one of the following conditions – MND, MSA, PSP, CBD, HD

They will need to be registered with a GP in the east Surrey area.

How do I get to see the specialist practitioner?

With consent, referrals are made via a neurologist, GP or other healthcare professional. People are also able to self-refer to the service.

How do I contact the specialist practitioner for MND and Rare Neurological Conditions?

By phone or e-mail.

Service contact details:

8:30am – 4:30pm

Monday to Friday (excluding bank holidays).
Service direct line: 01883 733892
Email: FCHC.CSNRT@nhs.net

Useful contacts:

  • Motor Neurone Disease Association (MNDA) Connect Helpline: 0808 802 6262
  • Multiple System Atrophy Trust (MSA) Trust 0333 323 4591
  • Progressive Supranuclear Palsy (PSP) Association – including Corticobasal Degeneration (CBD): 0300 0110 122
  • Huntington’s Disease Association 0151 331 5444

 

First Community provides front-line NHS community healthcare services in east Surrey and parts of West Sussex.

We provide first-rate care, through our first-rate people, offering first-rate value. For more information visit: www.firstcommunityhealthcare.co.uk

If you would like this information in another format, for example large print or easy read, or if you need help communicating with us:

First Community (Head Office)

Call: 01737 775450 Email: fchc.enquiries@nhs.net Text: 07814 639034

Address: First Community Health and Care, Orchard House, Unit 8a, Orchard Business Centre, Bonehurst Road, Redhill RH1 5EL

 

Compliments and complaints

We are passionate about making a difference and your feedback is really important to us.

Write to us using the above address or visit: www.firstcommunityhealthcare.co.uk/involvement-feedback

 

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For office use only: Version 1 PFD_LTC033 Publication date: July 2023